Useful Information including medical, research and case studies and Papers

Click on the links below to take you to various SPS and disability-related Information.

 

Available or Suggested Treatments

 

Cancer related

Childhood SPS

Definitions of SPS

  • SMS and Related Conditions

  • What in the World is Stiff Person Syndrome

  • Stiff Person Syndrome - With a short Case Study
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    Individual Patient Histories

    Neurotransmitters and GABA

    Non-SPS specific

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    Personal Accounts

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    Plasmapheresis and IVIG

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    SPS Specific Studies

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    Stiff Person Syndrome.

    This site is solely for the support of those suffering from Stiff Person Syndrome (SPS). Family and friends of sufferers are also welcome to the same support. The site may be of interest to caregivers, care professionals and researchers, together with advocates for the condition and the general public.

    Donations

    We always welome donations, no matter how large or small. You can donate on-line or via a donations form.

    To donate by secure credit card transaction, please use the button below. The full value of your donation (less credit card fees) comes to the charity.

    BT MyDonate  

      The group and charity was set up by Liz Blows with the following aims:

    (1) The relief of sickness and the protection and preservation of the health of persons affected by Stiff Person Syndrome, together with their families and carers.

    (2) On-going education and awareness-raising within the medical profession and the general public of Stiff Person Syndrome.

    (3) The promotion of research into the causes, effects, treatment and management of Stiff Person Syndrome.

    "Stiff Man Syndrome" (SMS) was the name assigned to the condition when first identified in the 1950s by Moersch and Woltman in the USA. In recent years, in the modern world of PC, the condition has become more widely known as "Stiff Person Syndrome" (SPS). SPS does not differentiate between sex, colour, or creed, although UK evidence tends to suggest women are most at risk.

    SPS is an auto-immune neurological condition. It is unique due to its lack of significant similarity to any other neurological diseases. Although rare, once observed it is quite unforgettable. However, many neurologists and GPs are still unaware of the condition. In most cases, the first symptoms are insidious and victims are often initially misdiagnosed with anxiety or depression.